Demelza offers a community hospice at home service for children and young people up to the age of 19, providing therapies, respite and end of life care in the comfort of a child’s own home across East Sussex.
Demelza specialist nurses also provide care and support in other community settings, allowing a child or young person to continue life as normal with as little disruption as possible.
Care in the home gives families a break without having to travel and enables children and young people with life-limiting and life-threatening conditions to have specialist care in familiar surroundings. As a result, families are given more flexibility and helped to retain a sense of control and independence.
Families needing reassurance at the end of the phone can contact our specialist team between 9am and 5pm, Monday to Friday. We also provide 24 hour support for children and young people requiring end of life care in conjunction with other healthcare professionals. Following a detailed inspection in 2016, Demelza Community was rated Outstanding by the Care Quality Commission.
It costs over £1,600 per day to run our East Sussex service and less than 10% of our costs are covered by government funding. We have to rely on support from generous people and groups within the local community to be able to survive. If you can help us in any way or would like to find out more about our services visit www.demelza.org.uk.
To find out more about Demelza see:
https://www.youtube.com/user/DemelzaVideos
https://www.demelza.org.uk/about-us/demelza-community-in-east-sussex
